Supporting and educating patients and families on the intestinal failure,
intestinal rehabilitation and intestinal and multivisceral transplantation journey.
Privacy Policy, Disclaimers, and
Terms of Use
Transplant Unwrapped’s Privacy Policy
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The purpose of Transplant Unwrapped’s website is to provide information about the organization and about intestinal and multivisceral transplantation to patients, caregivers, family members, healthcare professionals, and the general public.
By using this site, You agree to be bound by all of the Terms and Conditions and Privacy Policy set forth below. If You do not accept these Terms and Conditions and Privacy Policy, please do not use this site. Transplant Unwrapped may, at its sole discretion, revise these Terms and Conditions and Privacy Policy at any time; therefore, You should visit this page periodically to review the Terms and Conditions.
What information do we collect?
You may browse our website without identifying yourself or providing any personally identifiable information. When you interact with us through your computer, however, we do record certain non-identifying site-usage data, such as your number of visits to our website pages, type of internet browser you are using, domain name of the website you clicked on to come to our website, and/or IP address and server owned by your Internal Service Provider.
If you elect to provide us with individually identifying information, this may include name, email address, phone number, payment details, other demographic information, and health data. Transplant Unwrapped keeps all names, addresses, and all other personal information supplied by visitors to our website strictly confidential unless express consent is given otherwise.
How is this information used?
This data is used to store and process the information to better understand user needs and how we can improve our website; contact you directly including to deliver requested e-books and other educational materials; and to track usage behavior.
We may use this information to communicate with you by email, SMS (text) message, or postal mail from time to time. We may receive confirmation via HTML code when you open an email from us, which helps us measure our reach and ensure reduce or eliminate duplicate e-mails. If you no longer wish to receive e-mails from us, please unsubscribe or contact us at info@transplantunwrapped.org.
What are cookies?
Some parts of our website may also use 'cookies,' which are alphanumeric identifiers that are transferred to your computer through your web browser. You may configure your browser to accept all cookies, reject all cookies, or notify you when a cookie is sent. However, if cookies are rejected, some pages on our website may not function properly. Please view our cookie policy below.
Cookies Policy
When you interact with us, we use technological tools such as "Cookies," "Log Data," and other identifiers to receive and store certain types of information whenever you interact with our site. Examples include your IP address, unique device identifiers, session ids, computer or mobile device make and model, operating system, browser program and version, pages you requested and history. We may use this data to, among other things, tailor, customize and enhance services as well as your experience and to help diagnose, operate and administer our site. We also use cookies to save you time while using the Websites, remind us who you are, and track and target user interests in order to provide a customized experience. Cookies allow us to collect Non-Personally Identifiable Information from you, like which pages and applications you visited and what links you clicked on. Use of this information helps us to create a more user-friendly experience for all visitors. You may configure your browser to accept all cookies, reject all cookies, or notify you when a cookie is sent. However, if cookies are rejected, some pages on our website may not function properly.
Our site may automatically collect usage information, such as the numbers and frequency of visitors to our website and their components. This data is only used in the aggregate, that is, as a statistical measure, and not in a manner that would identify you personally. We use this information to design and improve our sites and may provide this information to partners so they can understand how often users use areas of our websites.
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When you visit our website, we may automatically collect certain information through the use of electronic tools like Cookies and Web beacons or Pixel tags. We use Non-Personally Identifiable Information to troubleshoot, administer our site, analyze trends, gather demographic and engagement information, enhance and customize our site, measure the effectiveness of our links, content and programming, comply with applicable law, and cooperate with law enforcement activities. We may also share this information with our authorized third-party service providers.
To opt out, you may visit the settings in the browser you are using
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To opt out of being tracked by Google Analytics across all websites, visit this link: http://tools.google.com/dlpage/gaoptout.
Additionally, Transplant Unwrapped may include a third-party cookie from Google in order to use Google Analytics to monitor site statistics. Please note that Google and its wholly owned subsidiaries may retain and use, subject to the terms of its Privacy Policy (located at http://www.google.com/privacy.html, or such other URL as Google may provide from time to time), information collected in Your use of the Service.
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Any automatically collected information may be maintained indefinitely and used for our internal business and marketing purposes, such as assessing traffic patterns and usage of various features on the site but will not be sold or otherwise disclosed to third parties for any purposes.
Please note: Children under the age of 13 should receive parental consent prior to disclosing any personal information and utilizing internet websites.
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What security is provided for the information?
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Our organization is hosted on the Wix.com platform. Wix.com provides us with the online platform that allows us to share our educational content with you. Your data may be stored through Wix.com’s data storage, databases and the general Wix.com applications. They store your data on secure servers behind a firewall. All direct payment gateways offered by Wix.com and used by our organization adhere to the standards set by PCI-DSS as managed by the PCI Security Standards Council, which is a joint effort of brands like Visa, MasterCard, American Express and Discover. PCI-DSS requirements help ensure the secure handling of credit card information by our store and its service providers. If you wish to have your data that was submitted to Transplant Unwrapped through the website edited or removed, or if you have concerns about your data, you can contact info@transplantunwrapped.org.
Our website also has a Secure Socket Layer (SSL) security certificate for website protection.
Transplant Unwrapped maintains the right to modify this privacy policy at any time by electronic notice posted on our website. Your continued use of our website after the date that such notice is posted will be deemed to be your agreement to the changed terms.
Disclaimers
Disclaimer on the Information Provided on the Transplant Unwrapped Website
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All articles, stories, videos, infographs, handouts, e-books, downloads, messages, and all other forms of content that appear in our website are provided for general information purposes only. They do not represent individual medical advice, counsel concerning individual treatments or medical care, referrals to healthcare professionals, or any other recommendations. You should not rely on any information on these pages to replace consultations with your doctor and other qualified healthcare professionals regarding your individual health needs. Statements or opinions expressed by physicians and other independent authors reflect the views of each such individual and do not necessarily reflect the views or any official policy of Transplant Unwrapped.
Transplant Unwrapped makes every effort to provide accurate and up-to-date information. However, Transplant Unwrapped expressly disclaims all responsibility and liability arising from your use of or reliance on this website or for the information contained herein as a reference source, and for any advice or other guidance or information provided by any health care provider contributing to this site.
Links Outbound
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Transplant Unwrapped’s website also contains links to other Internet sites. Transplant Unwrapped does not necessarily endorse the views expressed in the Internet sites to which it provides links, nor is the organization responsible for the information they contain. The content of these linked sites are the sole responsibility of such sites and their contributing authors. We do not intend links to other sites to be referrals or endorsements of the linked entities, but rather provides such links for convenience only.
Transplant Unwrapped’s website also contains links to videos and other forms of information on third party sites. Transplant Unwrapped does not necessarily endorse the views expressed in the videos or sites to which it provides links, nor is the organization responsible for the information they contain. The content of these linked videos and sites are the sole responsibility of such sites and their contributing authors. We do not intend links to other sites to be referrals or endorsements of the linked entities, but rather provides such links for convenience only.
Links Inbound
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Transplant Unwrapped grants you a limited, non-exclusive, revocable, non-assignable, personal, and non-transferable license to create hyperlinks to the Site under the following conditions: a) the links and the content on your website must not suggest any affiliation with or endorsement by Transplant Unwrapped or cause any other confusion regarding your relationship to Transplant Unwrapped or their online services; b) the link opens to the full version of applicable web page, and each page within the Site is displayed in full (including all trademarks and branding), unaltered, and without any accompanying frame, border, margin, design, branding, trademark, advertising, or promotional materials not originally displayed on the page within the Site; and c) the links and content on your website do not portray Transplant Unwrapped Representatives in a false, misleading, derogatory, or otherwise offensive matter, and do not contain content that is unlawful, offensive, obscene, threatening, harassing, or that violates this Agreement or any right of any third party or is otherwise objectionable to Transplant Unwrapped.
Transplant Unwrapped reserves the right to suspend, withdraw permission, or prohibit linking to its web pages and/or online services for any reason, in its sole discretion, without advance notice or any liability to any kind to you or any third party. Unless Transplant Unwrapped enters into a specific written agreement with you, you may not use any of Transplant Unwrapped’s names, logos, designs, slogans, trademarks, or service marks in or with your links, except that you may link to the Site using the plain text name of the Site.
Terms of Use
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Acceptable Use
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You agree to use Transplant Unwrapped only for its intended purpose and in an authorized manner. You must use Transplant Unwrapped in compliance with all privacy, data protection, intellectual property, and other applicable laws. The following uses of Transplant Unwrapped are prohibited. You may not:
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attempt to interfere with, harm, reverse engineer, steal from, or gain unauthorized access to Transplant Unwrapped, user accounts, or the technology and equipment supporting Transplant Unwrapped;
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frame or link to Transplant Unwrapped without permission;
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use data mining, robots, or other data gathering devices on or through Transplant Unwrapped, unless specifically allowed by these Terms;
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impersonate another person, or misrepresent your affiliation with a person or entity;
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sell, transfer, or assign any of your rights to use Transplant Unwrapped to a third party without the express written consent from Transplant Unwrapped; or
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use Transplant Unwrapped in an illegal way or to commit an illegal act in relation to Transplant Unwrapped.
User-Generated Content Policy
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When you transmit, upload, post, email or otherwise make available data, text, software, music, sound, photographs, graphics, images, videos, messages, or other materials on Transplant Unwrapped’s website, forum, or social media outlets, you give Transplant Unwrapped the irrevocable right to reproduce, distribute, publish, display, edit, modify, create derivative works from, and otherwise use your submission for any purpose in any form and on any media. You also agree that you will not:
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Post material that infringes on the rights of any third party, including intellectual property, privacy or publicity rights.
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Post material that is unlawful, obscene, defamatory, threatening, harassing, abusive, slanderous, hateful, or embarrassing to any other person or entity as determined by Transplant Unwrapped in its sole discretion.
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Post advertisements or solicitations of business.
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Impersonate another person.
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Allow any other person or entity to use your identification for posting or viewing comments.
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Post the same note more than once or “spam.”
Transplant Unwrapped reserves the right (but is not obligated) to do any or all of the following, in its sole discretion:
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Remove communications that are abusive, illegal or disruptive, or that otherwise fail to conform to these Terms and Conditions.
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Terminate a user’s access to the blog feature upon any breach of these Terms and Conditions.
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Edit or delete any communications posted on the blog feature, regardless of whether such communications violate these standards.
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The views and opinions expressed in comments are strictly those of the author(s) and in no way represent those of Transplant Unwrapped. We assume no liability for the information therein and extend no implied or expressed warranty or guarantee of accuracy. Finally, you agree that you will indemnify Transplant Unwrapped against any damages, losses, liabilities, judgments, costs or expenses (including reasonable attorneys’ fees and costs) arising out of a claim by a third party relating to any material you have posted.
Social media guidelines
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Transplant Unwrapped encourages comments, discussion and posts on our various social media outlets, including Facebook, Twitter, YouTube, Instagram, LinkedIn, and Transplant Unwrapped’s Patient and Caregiver Forum. We do not pre-moderate comments and welcome most posts. We do not delete or censor comments unless they have content that:
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is abusive
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is off-topic
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contains ad-hominem attacks
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promotes hate of any kind
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uses foul language
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is blatantly spam
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is reported as abuse
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violates the Forum’s rules and policies
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The Health Insurance Portability and Accountability Act of 1996 (HIPPA) ensures the confidentiality and security of patients' healthcare information. Therefore, to protect patients' privacy, Transplant Unwrapped will not respond to comments related to specific patients. Please remember that when you participate in public social media, your comments and/or posts may be published for all to see. For your own privacy, you shouldn't post detailed personal medical information linked to your name. We can't respond to every comment on public social media, particularly those that deal with individual medical cases and issues.
Transplant Unwrapped maintains the right to modify these terms of use and information policy at any time by electronic notice posted on our website. Your continued use of our website after the date that such notice is posted will be deemed to be your agreement to the changed terms.