Supporting and educating patients and families on the intestinal failure,
intestinal rehabilitation and intestinal and multivisceral transplantation journey.
Discharge Planning and Education
Discharge Planning and Education
Before you are discharged from the hospital your transplant team will provide you many hours of education on medication administration, organ transplant infection, and rejection. The transplant coordinator and nursing staff will help you in creating a schedule and system that can meet your child’s individualized needs.
After your child leaves the hospital, he/she will still be recovering. For the first four to six months there will be some restrictions on daily activities. During the recovery period, the transplant team will closely follow your child’s progress. He/She will need to be monitored on a long-term basis and you must agree to be available for blood work, examinations, abdominal scans, frequent endoscopic tests, and frequent follow up appointments in the transplant clinic. As time after transplant passes, follow-up visits tend to be less frequent unless complications develop. In this case, your child’s plan of care will be dependent on their medical condition.