Supporting and educating patients and families on the intestinal failure,
intestinal rehabilitation and intestinal and multivisceral transplantation journey.
Helpful Websites
for Clinicians
Patient, general transplant, digestive disease, and financial websites can be found here.
Pediatric specific websites can be found here.
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American Gastroenterological Association
Purpose: Provides clinical guidelines for numerous digestive diseases.
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American Academy of Pediatrics (AAP)
Purpose: Educate and support services for the healthcare of the pediatric population.
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Purpose: Liver education and advocacy.
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American Society for Parenteral and Enteral Nutrition (ASPEN)
Purpose: To improve patient care by advancing the science and practice of clinical nutrition and metabolism.
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American Psychiatric Association (APA)
Purpose: Education and advocacy for individuals with mental health conditions.
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American Society of Anesthesiologists (ASA)
Purpose: Medical professional and patient education on anesthesia and pain management.
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Association for Vascular Access (AVA)
Purpose: Research and advocacy for innovations in vascular access.
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American Society of Transplantation
Purpose: Education on all types of transplantation.
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American Society of Transplant Surgeons
Purpose: Advances the art and science of transplant surgery through patient care, research, education, and advocacy.
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American Speech-Language-Hearing Association (ASHA)
Purpose: Useful resource for providers who have patients who may have swallowing or feeding difficulties post-transplant or may have speech deficits from mechanical ventilation.
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Digestive Disease National Coalition (DDNC)
Purpose: Focuses on improving public policy and increasing public awareness with respect to diseases of the digestive system.
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Infusion Nurses Society (INS)
Purpose: International nonprofit organization representing infusion nurses and other clinicians who are engaged in the specialty practice of infusion therapy.
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International Transplant Nurses Society
Purpose: Education and clinical practice of transplant nurses.
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The Learn Intestinal Failure TeleECHO Clinic (LIFT-ECHO)—launched by Kishore Iyer, at Mount Sinai Hospital in New York—is an online community of medical professionals dedicated to supporting the treatment and management of intestinal failure patients.
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Purpose: Production of clinical guidelines, such as CLABSI protocols.
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North American Society For Pediatric Gastroenterology, Hepatology & Nutrition (NASPGHAN)
Purpose: Research and education in pediatric gastroenterology, hepatology, and nutrition.
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Wound, Ostomy and Continence Nurses Society (WOCN)
Purpose: Dedicated to advancing the practice and delivery of expert healthcare to individuals with wound, ostomy, and continence care needs.